Spotlight on: Disability Resources You Can Share With Families
While we try to teach our children all about life,
our children teach us what life is all about.
This issue of the Buzz from the Hub brings our best wishes for your great 4th of July! It focuses on disability resources that Parent Centers can share with families, including updated materials on the Hub.
We also share a very important, time-sensitive request for public input from the U.S. Department of Education.
All our best to you, as always,
The CPIR Team | Debra, Lisa, Jessica, Ana-Maria, and Myriam
Disability Resources You Can Share with Families
Early Signs of Autism Spectrum Disorders Video Tutorial | Also available in Spanish!
To improve recognition of the early signs of ASD among pediatricians, parents, and early intervention providers, the Kennedy Krieger Institute has developed this free 9-minute video tutorial on ASD behavioral signs in one-year-olds. The tutorial includes six video clips comparing toddlers who show no signs of ASD to toddlers who show early signs of ASD. Each video is presented with a voice-over explaining whether the specific behaviors exhibited by the child are signs of ASD or not.
Updated at CPIR | Rare Disorders Fact Sheet
Connect families with information in English and Spanish about rare genetic and other disorders.
What You Need to Know: Information and Support for Parents of Children with Kidney Disease
This article is written by a parent of a new baby who had an “incurable kidney disease” that would “require her to have a kidney transplant early in her life.” The article discusses the impact of kidney disease; gives the parent’s perspective on the tears, hurdles, and joy involved in parenting a child with kidney disease; and closes with organizations to connect with and other recommended resources.
Educational Advocates: A Guide for Parents
Navigating the special education system can be challenging. CADRE’s new resource provides families interested in hiring an advocate with questions to consider and highlights additional resources available to families.
Back to top
Request for Public Input
Important Alert for Parent Centers!
The Department of Education has published a Federal Register notice to provide the public with the opportunity to submit comments concerning regulations and policy guidance they would recommend that the Department repeal, replace, or modify. This includes regulations under Title 34 Code of Federal Regulations (Education), ED’s significance guidance documents (such as Dear Colleague Letters and policy letters), and the newly redesigned IDEA site.
This request is in response to Trump’s Executive Order 13777 (February 2017), which requires evaluation of existing regulations.
Public comments are due by August 21, 2017.
Read more here about the Executive Order and what it covers—and about how to submit your comments.
The CPIR hopes that you’ve found useful and relevant resources listed in this month’s Buzz from the Hub. Please feel free to write to the editor, Lisa Küpper, at firstname.lastname@example.org to suggest the types of resources you’d like to see in the future. CPIR is listening! Your input is extremely valuable to helping us to craft newsletters that support your work with families.
Debra, Myriam, Jessica, Ana-Maria, and Lisa
The CPIR Team
This eNewsletter from the CPIR is copyright-free.
We encourage you to share it with others.
Center for Parent Information and Resources
c/o SPAN, Inc.
35 Halsey St., Fourth Floor
Newark, NJ 07102
Publication of this eNewsletter is made possible through Cooperative Agreement H328R130014 between OSEP and the Statewide Parent Advocacy Network (SPAN). The contents do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government or by the Center for Parent Information and Resources.