Miscellaneous Healthcare Resources

Health Care and the Medical Home

A medical home is the kind of primary health care we all want and deserve. A medical home is not a place—it is the way care is provided to children/youth and their families. If you have a child with health care needs, or you work with families that do, visiting the National Center for Medical Home Implementation will lead you to a great many resources, including: 1-page fact sheets, pages and forms you can use to “build your care” notebook, and interactive maps where you can find out more about medical home initiatives going on in your state and points of contact.

Want to connect with all this and more? Let us tell you more about the National Center here.

Involving Your Child in the Decision-Making Process

Shared Decision-Making and Children with Disabilities: Pathways to Consensus, a clinical report published by the American Academy of Pediatrics (AAP), states that children, when cognitively able, should be involved in decisions about their care. Too often this is mistaken by parents and professionals to only mean “the big decisions,” but research shows that inclusion in smaller decisions as well can have a significant impact over time.

Presenting children with information—appropriate for their developmental age—can help in their understanding of their condition and treatments, reduce fear, and enhance self-confidence.

This article shares multiple tips for parents to ensure that their child is appropriately informed and involved. Read the article here.

Resources within the Medical and Healthcare Community

Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don’t need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community. Here are resources to explore.

Health Care Rights, Protections, and the Law

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HIPAA Basics

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