Rare Disorders
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Other Health Impairment
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Heard of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis? This long-term illness causes extreme fatigue and sleep programs but is often called an “invisible” disease because usually the only thing noticeable is the person’s “pallor.” ME/CFS affects an estimated 836,000 to 2.5 million individuals in the United States (including children), although most have not been officially diagnosed. On “bad” days, those with the illness may feel so weak and exhausted that they can’t go to doctor appointments, for example, or go to or function at school.
Find out more about ME/CFS in this new fact sheet from the Centers for Disease Control and Prevention (CDC). Three versions are available: one for parents and guardians, another for healthcare professionals, and a third for education professionals.
Helping Children with Congenital Cytomegalovirus (CMV)
When a baby is born with cytomegalovirus (CMV) infection, it is called congenital CMV infection. About 1 out of every 200 babies are born with congenital CMV infection. Women can pass CMV to their baby during pregnancy.
According to the Centers for Disease Control and Prevention (CDC), only about 1 in 5 babies with congenital CMV infection will be sick from the virus or will have long-term health problems, but those problems can include hearing loss, vision loss, intellectual disability, muscular weakness, and even seizures.
Lead Poisoning
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Intervention IDEAs for Infants, Toddlers, Children, and Youth Impacted by Fetal Alcohol Spectrum Disorders
(2017, January) Useful to Parent Centers, early intervention providers, educators and schools, and families in understanding more about fetal alcohol spectrum disorders (FASDs) and how to address behavioral and academic issues of those impacted by FASDs. | This topical issue brief on Fetal Alcohol Spectrum Disorders from the Office of Special Education Programs at the U.S. Department of Education outlines the different FASDs, discusses prevention, and describes behavioral and academic interventions for families, infants, preschool-aged children, and school-aged children, including youth. Additional resources are also provided. 10 pages, PDF format (261 kb).
Access the Topic Brief.
What You Need to Know: Information and Support for Parents of Children with Kidney Disease
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Cerebral Palsy
Cerebral palsy—also known as CP—is a condition caused by injury to the parts of the brain that control our ability to use our muscles and bodies. Cerebral means having to do with the brain. Palsy means weakness or problems with using the muscles.
Tourette Syndrome
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Epilepsy
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Spina Bifida
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