Links updated, October 2016
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If you’re reading this, perhaps you’re concerned about your child’s development. We’re glad you’re here, because there are many immediate things you can do to help your son or daughter. First, know that there’s help available to find out just what the difficulties are, if any, and address those difficulties.
The good news is that this help is usually free, and it’s available in every state. Keep reading if you’d like to know more.
- The developing child
- Talking to your pediatrician
- Developmental evaluation
- Things to know
- IDEA’s definition of “developmental delay”
- Resources for you
The Developing Child
Think of all the skills that children have to learn when they come into the world: smiling, turning over, responding to people, communicating, eating solid food, crawling, standing, and on and on. We expect these skills to emerge naturally over time and know more or less when they should. At 3 months, Susana will probably be doing this, at 4 months, she’ll be doing that. By a year, well, she’ll be tottering around, getting into everything.
The time-table for skills to emerge is commonly called the developmental milestones. What’s considered normal development is described rather broadly. That’s because we know that children don’t learn skills at the same pace. Two different children born on the same day may learn the same skill months apart, and both can be considered “on schedule.” It’s when skills don’t emerge as expected, more or less on that broad schedule, that parents and caregivers may become concerned.
What to do? First, you may want to talk with your pediatrician about your child’s development.
Talking to Your Pediatrician
Don’t be surprised if the pediatrician tells you not to worry, to be patient, to give your child more time to develop. Often, that’s what parents hear, especially in the early stages of investigating their child’s seeming delays. And it’s often true. Children develop at different rates; the pediatrician is well aware that many children show sudden bursts in development rather than slow, steady growth.
On the other hand, your pediatrician may recommend that a developmental screening be conducted. Its purpose is to see if, yes, your child is experiencing a developmental delay. The screening is a quick, general measure of your child’s skills and development. It’s not detailed enough to make a diagnosis, but its results show whether or not a child should be referred for a more in-depth developmental evaluation.
The developmental evaluation should be conducted by a highly trained professional who can use the results to create a profile of your child’s strengths and weaknesses. The evaluation needs to look at five developmental areas. Those areas are:
- Physical development (fine motor skills, gross motor skills)
- Cognitive development (intellectual abilities)
- Communication development (speech and language)
- Social or emotional development (social skills, emotional control)
- Adaptive development (self-care skills)
The results of the developmental evaluation will be used to decide if your child needs early intervention services and/or a treatment plan. Early intervention services are tailored to meet a child’s individual needs and, as such, are a very important resource to children experiencing developmental delays. Early intervention services can include:
- Assistive technology (devices a child might need)
- Audiology or hearing services
- Speech and language services
- Counseling and training for a family
- Medical services
- Nursing services
- Nutrition services
- Occupational therapy
- Physical therapy
- Psychological services
Things to Know
States have an affirmative obligation to help children who are experiencing a developmental delay in one or more areas. Through the Child Find system that states operate, developmental screenings and developmental evaluations are typically provided free of charge to families.
If you’re concerned about your child’s development, talk to your child’s pediatrician, who can refer you to the Child Find system in your area. If your child does have a developmental delay or is found to have another disability, then he or she may be eligible for services to address areas of individual need. Depending on the age of your child, those services typically are:
Early intervention services are meant for children under the age of 3. They are provided to eligible families either free of charge or on a sliding payment scale that’s determined by the family’s income. Find out about early intervention services in your area by talking to your child’s pediatrician, calling a local hospital, or finding your state’s contact for early intervention at the Early Childhood Technical Assistance Center.
Special education services are meant for children over the age of 3. Services are provided to eligible children free of charge through the public school system. If your child has passed his or her third birthday and you’re concerned about a developmental delay or disability, call your local school (even if your child isn’t enrolled there) and ask how and where to have your child evaluated under IDEA, our nation’s special education law.
Get to Know Your Parent Center!
You’ll also want to get in touch with the Parent Training and Information (PTI) center that serves your state or a given region within the state. Every state has at least one PTI. Parent Centers specialize in connecting parents and others with local resources and providing them with information and training on disability topics, such as what rights you and your child have under federal and state law, how to work with service providers and schools to support your child’s development and learning, the network of knowledge associated with your child’s disability, and much, much more.
Your state may also have a Community Parent Resource Center (CPRC); these centers also help parents and family members learn about vital disability-related information and needed assistance in their State and beyond.
To find your Parent Center: Visit our Find Your Parent Center page.
IDEA’s Definition of Developmental Delay
IDEA is the Individuals with Disabilities Education Act. Through IDEA, early intervention services and special education services are made available to our nation’s children. Not surprisingly, IDEA includes a definition of developmental delay, which may be useful to know. Here it is:
Child with a disability for children aged three through nine (or any subset of that age range, including ages three through five), may…include a child—
(1) Who is experiencing developmental delays as defined by the State and as measured by appropriate diagnostic instruments and procedures in one or more of the following areas: Physical development, cognitive development, communication development, social or emotional development, or adaptive development; and
(2) Who, by reason thereof, needs special education and related services. [34 CFR §300.8(b)]
It’s a good idea to find out if your state has added details to this definition of developmental delay. States are allowed to do so, if they choose. They also decide on the age range of children with whom the term may be used (3-5, 3-9, or any subset between 3-9). Your local school or early intervention program should be able to tell you the definition of developmental delay that’s used in your area.
You can also visit the Early Childhood Technical Assistance Center (mentioned earlier) and find out how your state defines developmental delay, as well as the criteria of eligibility for services to young children, birth through 2 years of age, and their families. The ECTA Center makes this information available online at:
It may be helpful to know that, under IDEA:
- Your state may not require that your local school district also adopt and use the term developmental delay in working with children.
- If your local school district decides to use the term, it must use the same definition and age range as the state does.
- Your local school district may not use the term at all if your state has chosen not to use the term.
Resources for You
It’s very helpful to read more about developmental delay. This has been just a brief overview, with pointers to loads of additional info and support, listed below.
All about…from the CDC, the Centers for Disease Control and Prevention.
From CDC, the Centers for Disease Control and Prevention.
From CPIR’s own site.
From the Encyclopedia of Children’s Health.
All about early detection of developmental delays and disabilities, especially autism.
Connect with other parents.
Interested in talking to other parents whose children have developmental delays? Try Parent to Parent. They’ll connect you with other parents like yourself for support and exchange.
Connect with the disability community and parent expertise.
Every state has a Parent Training and Information Center, known as the PTI. Some states have several. If you are looking to connect with state and local resources, or have questions about services and parent rights, talk to your PTI. Find the PTI for your state by visiting our Find Your Parent Center page, at: