Here are the worksheets, forms, data item definitions, and supporting resources for Parent Centers to use in submitting results of the 2019 Parent Center Data Collection activities and Program Measures Survey.  

This page gives Parent Centers the tools they need to collect and submit data on their Center’s activities  for the 2018-2019 program year (October 1, 2018 to September 30, 2019), as well as the results of the Program Measures Survey. A number of supporting materials are included throughout. A separate Frequently Asked Questions (FAQ) page is also available, and there is a schedule of drop-in call times for those who have questions or concerns to discuss.

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Part 1 Data Collection Forms, Definitions, and Where to Submit Your Data

Part 1 data collection refers to the number of contacts your Parent Center made via trainings and individual assistance in the 2018-2019 program year, the unduplicated parent count, descriptive disability data, and demographic data. To complete Part 1 of the data collection, use the forms and definition materials linked below.

Deadline for submission | November 22, 2019

This year | The 2019 forms and definitions are unchanged from last year’s.  May we remind you that in the past, the definition of “email contacts” was revised. That revision still applies. As a refresher, here it is again:

EMAILS/ TEXTS AND OTHER ELECTRONIC MODES | Count number of contacts using email or other electronic modes (e.g., text messages, Facebook messages, etc.) specifically for one-to-one individual assistance. Do not include mass e-mails that are for disseminating resources or for outreach activities.


On Newsletters Disseminated, make sure to add the total number of parent center periodicals distributed (print or on-line newsletters, magazines, e-newsletters, etc.), the print periodicals mailed or handed out, the number of subscribers or recipients of newsletters sent via e-mail, and the number of page views of newsletters posted on parent center’s website.

Submit your Part 1 data using this Online Data Submission Form by November 22, 2019!

Supporting Materials

Read Sample Scenarios for Part 1 Data Collection 

Sample Script for Collecting Race/Ethnicity Data (in Word)
Information about the race/ethnicity of callers served by the Parent Center was added to the data collection forms last year.  The Sample Script (linked above) provides some language you might use in your Parent Center’s intake process, in order to collect that data. Please feel free to customize this script for use based on your data systems and intake/interview processes.

Listen to Webinar 1 explaining the form 
(This webinar was originally produced for the 2014-15 form. The next year’s form, 2015-16, was only altered slightly, so the explanation in this webinar was still on point. This year’s form, 2018-19, has not been changed, so the webinar remains a good walk-through of how to fill out this year’s data collection form.)

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Part 2 Data Collection | Program Measures Survey: Why, How, and Where to Submit Results

Part 2 data collection refers to the Program Measures Survey, where your Center will ask a specific number of parents about their satisfaction with the information or services they received from your Center in the last 6 months of the 2018-2019 program year. Materials and resources available include: overview of Program Measures Survey on program performance for the year 2018-19, instructions for completing, worksheets, survey forms in English and Spanish.

Deadline for submission | Wednesday, December 18, 2019

Overview of Part 2 data collection (online) | Also in Word

Instructions for Collecting and Submitting Your Data from the Program Measure Survey (online) | Also in Word

Program Measures Survey in English (in Word)

Program Measures Survey in Spanish (in Word)

        Program Measures Survey in Korean (in Word)

Worksheet for Tallying Up Survey Results (in Word)

Submit your data using this Online Data Submission Form
(To be completed by Wednesday, December 18, 2019)

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