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Charting the LifeCourse

The National Community of Practice for Supporting Families of Individuals of I/DD has been working to develop systems of support for families throughout the lifespan of their family member with intellectual and developmental disabilities (I/DD). Especially for individuals, families, and professionals are the Charting the LifeCourse materials, which include a LifeCourse toolkit in English and Spanish. The framework for Charting the LifeCourse was created BY FAMILIES to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.

Read more about and access the LifeCourse Toolkit in English and Spanish here.

Practice Guides for Families

The ECTA Center offers a collection of Practice Improvement Tools to support early childhood specialists in using evidence-based practices with young children experiencing developmental delays or disabilities. This large set of tools includes Family Practice Guides that practitioners can share with families to illustrate recommended practices that can be used at home. There are more than 25 guides available, on topics ranging from parent involvement in their child’s assessment, learning activities for the child that parents can provide, and teaming with professionals.

Each of the guides is available in English and Spanish and comes with a brief video, a scenario, and changes to expect as a result of using the practices with a given child. Find out more about, and access, the Family Practice Guides here.

Milestones Photo and Video Library

Children reach milestones in how they play, learn, speak, act, and move (rolling over, for example, or crawling, standing, walking, talking). The Centers for Disease Control and Prevention (CDC) maintain a free online library of photos and videos that capture the milestones of development that young children might be expected to achieve at various ages–skills such as taking a first step, smiling for the first time, and waving “bye bye.”

The photo library is part of CDC’s larger information suite Milestones in Action, which also includes fact sheets on developmental milestones and on developmental delay; a developmental checklist; the Milestone Tracker app; and more. Each resource is available in English and Spanish.

Interested? Read more about (and access) Milestones in Action here.

Partners in Education | Online Module

(2014) | Available in English and Spanish | Useful to parents of children with developmental disabilities. This 3-hour self-directed course was created to help parents of children with developmental disabilities understand and maximize the special education system. The course focuses on: a child’s right to a free appropriate public education (FAPE), the laws that protect […]

USA.gov en Español

(2019) | Useful to Parent Centers, service providers, and Spanish-speaking communities in learning about helpful systems in the United States and what services and information the government makes available in Spanish Description of this resource in English Descripción de este recurso en español _____________ Description of This Resource in English This official website of the […]

OSEP English to Spanish Translation Glossary

The OSEP Glossary of Spanish Translations of Common IDEA Terms went missing for a time, in the way that things inexplicably vanish from the Web, but we searched and found it and brought it back home! This 2nd edition of the glossary includes over 400 terms related to IDEA Parts B and C (the parts of IDEA that cover special education and early intervention services, respectively) and provides their Spanish translation. The terms were selected by experienced translators from Parent Centers and reviewed in focus groups of 90 parents/caregivers of children receiving services under IDEA. The families that participated came from a diversity of Spanish-speaking cultures, so that the glossary would “speak” across the rich variation of how Spanish is spoken around the world.

Two formats of the glossary are available (PDF and an online, searchable version). Read more about the glossary here and access the format of your choice.

Apoyo Padre a Padre

Actualizado, 2018 Escrito por Betsy Santelli Traducido por Miguel S. González La Historia de María y Emilio María y Emilio llevaban cinco años de casados cuando su hijo Pedro nació. Era un bebé precioso y les cambió la vida para siempre. A María y a Emilio les llevó algo de tiempo darse cuenta de que […]

Basic Information about Trauma

A resource collection compiled by and for Parent Centers. Coordinated by the Region 2 Parent Technical Assistance Center @ ECAC September 2018 The contents of this page will help Parent Centers, families, and others build their knowledge base and understanding of what trauma is, what kinds of trauma there are, and how it affects children in […]

Helping Children Cope and Children with Special Healthcare Needs in Emergencies | Spanish

(2018, June) | Spanish | Useful to Parent Centers and other service organizations working with Spanish-speaking families to prepare for or recover from a natural disaster or other emergency. These two resources comes from the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the Children’s Preparedness Unit and focus on helping parents, caregivers, and […]

Ayuda para Niños con Discapacidades (3-21)

Actualizado, enero de 2018 Esta información en inglés | This information in English   Si Ud. tiene o conoce un niño entre las edades de 3 a 21, y tiene preocupaciones acerca de su desarrollo, bienestar emocional, conducta, aprendizaje o discapacidad, esta página le ayudará a familiarizarse con los sistemas de apoyo para niños con […]

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