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Parent as Master Planner

Parents or adult family members play an essential role as learning coaches, ensuring their children have the structure and support to succeed in online and distance learning environments. This learning coach/master planner role is particularly important for children with disabilities, learning and attention issues, and those who struggle with executive function skills, including organization and prioritizing. This article from schoolvirtually.org offers several ways to get started in your role as learning coach. The article ends with a list of Visual Schedule apps you can download. Access the article and the list of Visual Schedule apps here.

The Unplanned Journey

When You Learn That Your Child Has a Disability by Carole Brown, Samara Goodman, and Lisa Küpper Links updated, March 2020 The birth of a child with a disability, or the discovery that a child has a disability, can have profound effects on the family. In “You are Not Alone,” Patricia McGill Smith offers the […]

Charting the LifeCourse

The National Community of Practice for Supporting Families of Individuals of I/DD has been working to develop systems of support for families throughout the lifespan of their family member with intellectual and developmental disabilities (I/DD). Especially for individuals, families, and professionals are the Charting the LifeCourse materials, which include a LifeCourse toolkit in English and Spanish. The framework for Charting the LifeCourse was created BY FAMILIES to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.

Read more about and access the LifeCourse Toolkit in English and Spanish here.

Overview of Professionals in the School-Age Special Education System

(2019, March) | Useful to Parent Centers and schools for sharing with families involved in their child’s special education. Throughout the academic career of a child with a disability, he or she will come into contact with dozens of different professionals who are there for support. The list that this article from eParenting provides an […]

Milestones Photo and Video Library

Children reach milestones in how they play, learn, speak, act, and move (rolling over, for example, or crawling, standing, walking, talking). The Centers for Disease Control and Prevention (CDC) maintain a free online library of photos and videos that capture the milestones of development that young children might be expected to achieve at various ages–skills such as taking a first step, smiling for the first time, and waving “bye bye.”

The photo library is part of CDC’s larger information suite Milestones in Action, which also includes fact sheets on developmental milestones and on developmental delay; a developmental checklist; the Milestone Tracker app; and more. Each resource is available in English and Spanish.

Interested? Read more about (and access) Milestones in Action here.

Early Intervention Directory (Birth-3)

Link updated, February 2020 The Military & Community Family Policy, Office of Special Needs’ Early Intervention Directory is organized to help you quickly obtain the information you need to make decisions for your child with special needs. The directory will enable you to: Identify and learn about the early intervention provider serving your new location […]

OSEP English to Spanish Translation Glossary

The OSEP Glossary of Spanish Translations of Common IDEA Terms went missing for a time, in the way that things inexplicably vanish from the Web, but we searched and found it and brought it back home! This 2nd edition of the glossary includes over 400 terms related to IDEA Parts B and C (the parts of IDEA that cover special education and early intervention services, respectively) and provides their Spanish translation. The terms were selected by experienced translators from Parent Centers and reviewed in focus groups of 90 parents/caregivers of children receiving services under IDEA. The families that participated came from a diversity of Spanish-speaking cultures, so that the glossary would “speak” across the rich variation of how Spanish is spoken around the world.

Two formats of the glossary are available (PDF and an online, searchable version). Read more about the glossary here and access the format of your choice.

Video | 8 Insider Tips on Navigating IEP Meetings

“Are you getting ready for an IEP meeting? Are you nervous or wondering what to expect? You’re not alone.”

This 13-minute video from understood.org is directed at parents who are getting ready for an IEP meeting or who are new to the process. The video captures the conversation between two parents (one a former teacher), both of whom are “veterans” of many IEP team meetings. They candidly talk about what they wish they’d known before the meetings. Eight nuggets of guidance emerge during their conversation.

The video is available in English and, using subtitles, in Spanish. Read more here, and learn about accompanying resources, including the podcast Why We Cry at IEP Meetings.

Especially for…Families and Communities

Each of us is a being in himself and a being in society, each of us needs to understand himself and understand others, take care of others and be taken care of himself. — Haniel Long Welcome to our hubpage for families and communities. Here, those of you who are parents can find information to help […]

Social Security Benefits for Children with Disabilities

(2018) | Useful for Parent Centers in understanding SSI benefits for children with disabilities and for sharing with families whose children are under the age of 18. A child with a disability who is younger than 18 years of age may be eligible for Supplemental Security Income (SSI). Have a look at SSA’s Child Disability […]

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