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Identification, Evaluation, and Management of Children With Autism Spectrum Disorder

For the first time in 12 years, the American Academy of Pediatrics has issued a report that includes updated clinical recommendations on autism spectrum disorder (ASD). The 71-page report provides updates on the increasing number of children with ASD, as well as expanded knowledge on risk factors, co-occurring medical and behavioral conditions, genetic contributions, and the body of research on evidence-based interventions.

This updated document aims to provide primary care providers with a summary of current information in a single report that will help guide them in providing a medical home for the patient with ASD. The document is searchable by topic and includes a glossary and a section on working with families. Read more about and access the report here.

Providing a High-Quality Education for Students with Disabilities

(2019) | Useful for Parent Center capacity building and for sharing with state and local education leaders and advocates The primary mechanism for ensuring that students with disabilities receive the right educational content and rigor at the right moment in their education is the individualized education program (IEP). This resource from the Council of Chief […]

Practice Guides for Families

The ECTA Center offers a collection of Practice Improvement Tools to support early childhood specialists in using evidence-based practices with young children experiencing developmental delays or disabilities. This large set of tools includes Family Practice Guides that practitioners can share with families to illustrate recommended practices that can be used at home. There are more than 25 guides available, on topics ranging from parent involvement in their child’s assessment, learning activities for the child that parents can provide, and teaming with professionals.

Each of the guides is available in English and Spanish and comes with a brief video, a scenario, and changes to expect as a result of using the practices with a given child. Find out more about, and access, the Family Practice Guides here.

Autism Navigator

Autism Navigator is a unique collection of web-based tools and courses that integrate the most current research in autism with an interactive web platform and lots of video footage showing effective evidence-based practices. It’s intended for professionals as well as families. Families can start with the short video About Autism in Toddlers (you have to […]

OSEP English to Spanish Translation Glossary

The OSEP Glossary of Spanish Translations of Common IDEA Terms went missing for a time, in the way that things inexplicably vanish from the Web, but we searched and found it and brought it back home! This 2nd edition of the glossary includes over 400 terms related to IDEA Parts B and C (the parts of IDEA that cover special education and early intervention services, respectively) and provides their Spanish translation. The terms were selected by experienced translators from Parent Centers and reviewed in focus groups of 90 parents/caregivers of children receiving services under IDEA. The families that participated came from a diversity of Spanish-speaking cultures, so that the glossary would “speak” across the rich variation of how Spanish is spoken around the world.

Two formats of the glossary are available (PDF and an online, searchable version). Read more about the glossary here and access the format of your choice.

Health Care and the Medical Home

A medical home is the kind of primary health care we all want and deserve. A medical home is not a place—it is the way care is provided to children/youth and their families. If you have a child with health care needs, or you work with families that do, visiting the National Center for Medical Home Implementation will lead you to a great many resources, including: 1-page fact sheets, pages and forms you can use to “build your care” notebook, and interactive maps where you can find out more about medical home initiatives going on in your state and points of contact.

Want to connect with all this and more? Let us tell you more about the National Center here.

Webinar Series on Family, School, and Community Engagement

Useful to Parent Centers, school systems, community partners, and families, all of whom play a role in successful stakeholder engagement in education. This webinar series makes clear that effective family engagement is not a one-time program or the choice of a good school. Rather, it’s a set of day-to-day practices, attitudes, beliefs, and interactions that […]

Video | Effective Family Engagement Could Look Like This

(2018) | Useful to Parent Centers and school systems interested in building strong family engagement practices in their children’s education and learning. This 5-1/2 minute video is a product of the Wisconsin Department of Public Instruction (DPI). It discusses the need to shift the way schools partner with families to help students learn, moving from […]

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