Disability Fact Sheet Resources updated, March 2021 “Alone we are rare. Together we are strong.” Slogan of Rare Disease Day —February 29, 2012. Roughly 7,000 rare diseases/disorders have been identified as affecting the human race. Because they are rare, it can be a real challenge for a person to be accurately diagnosed. Finding effective treatments, especially […]
Updated June 2020 Welcome to the alphabet soup of special education! The disability community is full of acronyms that people constantly use in writing and in conversation, and it’s important to know what those acronyms stand for. Acronyms are used in order to abbreviate names or phrases. The CPIR is pleased to provide this list […]
Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities is an authoritative report submitted by the National Council on Disability to the President and Congress as part of the Council’s independent advisory role. The report examines the challenges faced by individuals with intellectual and developmental disabilities (ID/DD), and how the use of alternatives such as supported decision-making enable some individuals with ID/DD to exercise greater self-determination and economic self-sufficiency. Access the report here.
Each May, the American Speech-Language-Hearing Association (ASHA) highlights Better Hearing & Speech Month (BHSM) to raise awareness about communication disorders. Lack of awareness has been seen as the #1 barrier to early detection of communication disorders. Research has shown that early detection is critical to addressing communication disorders. Delayed intervention can result in delayed development […]
For the first time in 12 years, the American Academy of Pediatrics has issued a report that includes updated clinical recommendations on autism spectrum disorder (ASD). The 71-page report provides updates on the increasing number of children with ASD, as well as expanded knowledge on risk factors, co-occurring medical and behavioral conditions, genetic contributions, and the body of research on evidence-based interventions.
This updated document aims to provide primary care providers with a summary of current information in a single report that will help guide them in providing a medical home for the patient with ASD. The document is searchable by topic and includes a glossary and a section on working with families. Read more about and access the report here.
Links updated, September 2020 In This Publication… About deaf-blindness (Keep scrolling) Help for children with deaf-blindness Resources in your state and beyond Back to top About Deaf-Blindness There are approximately roughly 45,000 to 50,000 individuals in the U.S who are deaf-blind.  According to the 2018 National Deaf-Blind Child Count, over 11,000 are children under […]
Identifying students who have specific learning disabilities (SLD) and are eligible for special education can be a complicated process under IDEA. To improve policy and practice, 11 national organizations, working together, developed this 2-page resource, Eligibility for Special Education Under a Specific Learning Disability Classification. The resource succinctly lays out 8 critical elements of a quality evaluation process when SLD is suspected. Using these 8 principles, schools and evaluation teams can examine their current practices and determine areas that need improvement. Access the principles and a list of additional resources here.
Teachers can play an important role in helping students recover from a concussion as they return to school. Making short-term changes to students’ school work load and schedule—and giving them the time to help their brain heal—can help them get back to their regular school routine. CDC’s “Heads Up to Schools: Know Your Concussion ABCs” […]
When a baby or preschooler lags far behind, doesn’t reach key developmental milestones, or loses a previously acquired skill, it’s reasonable to suspect a mental or physical problem serious enough to be considered a developmental disability. These pages in English and Spanish appearing on the HealthyChildren.org website provide authoritative guidance on developmental disabilities, developmental milestones at various ages, and what parents and professionals need to know or do. Each page is actually a suite of articles in both languages about specific disabilities that are considered as developmental disabilities. Perfect for sharing with the English and Spanish-speaking families and communities you serve!
Links updated April 2019 See fact sheets on other disabilities Sharon’s Story Causes of multiple disabilities Multiple disabilities aren’t all the same Have you recently learned that your child has multiple disabilities? Help for children with multiple disabilities IDEA’s definition of multiple disabilities Beyond the federal definition The evaluation process Supporting children with multiple disabilities […]