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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Heard of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis? This long-term illness causes extreme fatigue and sleep programs but is often called an “invisible” disease because usually the only thing noticeable is the person’s “pallor.” ME/CFS affects an estimated 836,000 to 2.5 million individuals in the United States (including children), although most have not been officially diagnosed. On “bad” days, those with the illness may feel so weak and exhausted that they can’t go to doctor appointments, for example, or go to or function at school.

Find out more about ME/CFS in this new fact sheet from the Centers for Disease Control and Prevention (CDC). Three versions are available: one for parents and guardians, another for healthcare professionals, and a third for education professionals.

Health Care and the Medical Home

A medical home is the kind of primary health care we all want and deserve. A medical home is not a place—it is the way care is provided to children/youth and their families. If you have a child with health care needs, or you work with families that do, visiting the National Center for Medical Home Implementation will lead you to a great many resources, including: 1-page fact sheets, pages and forms you can use to “build your care” notebook, and interactive maps where you can find out more about medical home initiatives going on in your state and points of contact.

Want to connect with all this and more? Let us tell you more about the National Center here.

What is Applied Behavior Analysis?

Applied behavior analysis (ABA) is the most common therapy for children on the autism spectrum. ABA has been shown to help children on the spectrum (from mild to severe) develop needed skills and minimize undesired behaviors such as self-injury. Its effectiveness is backed up by hundreds of studies.

ABA now includes a range of different approaches. This article from the Child Mind Institute describes how they work and how they’re different, and concludes with links to additional readings on ABA.

Access the article in English and Spanish, and connect with the companion readings.

CDC’s Report to Congress on the Management of TBI in Children

A traumatic brain injury (TBI) disrupts the normal function of the brain, and can be caused by a bump, blow, or jolt to the head, or a related injury. It affects children differently from adults–and children have the highest rate of emergency department visits for traumatic brain (TBI) injury of all age groups. The Centers for Disease Control and Prevention (the CDC) have just released a Report to Congress on the Management of Traumatic Brain Injury in Children, which details the impact a TBI can have on children and their families. Accompanying the report are 4 fact sheets for different audiences as well as graphics and digital ads that can be used on the web, Facebook, and Twitter to “get the message out.”

Access the CDC’s report to Congress, the fact sheets, and other materials, beginning at:
https://www.cdc.gov/traumaticbraininjury/pubs/congress-childrentbi.html

Disability Awareness

Updated, January 2018 Parent Centers receive many calls and emails each year from people looking for materials on disability awareness. People need these materials to help community members, employers, organizations, and residents learn more about disabilities and what it means for people to live with a disability or raise a child with a disability. Having information […]

Emotional Disturbance

Current as of December 2017 This information in Spanish   The mental health of our children is a natural and important concern for us all. The fact is, many mental disorders have their beginnings in childhood or adolescence, yet may go undiagnosed and untreated for years. (1) We refer to mental disorders using different “umbrella” […]

A Resource Collection on Positive Behavior Supports, Functional Behavioral Assessment, and School Discipline

A resource collection compiled by and for Parent Centers.Coordinated by the NE Parent Center Assistance & Collaboration Team/Region 1 Parent Technical Assistance Center @ SPANin collaboration with NH Parent Information CenterMany, many thanks go out to the Development and Review Team! November 2017   Welcome to this collection of resources on positive behavior supports and discipline […]

What is ODD?

(2017) | Useful to Parent Centers, other service providers, and families who have behavioral concerns about a defiant child When parents turn to the Internet looking for answers about their child’s behavior problems, one phrase tends to jump out: oppositional defiant disorder or ODD. “The words ‘oppositional’ and ‘defiant’ show up in parents’ vocabulary fairly frequently,” […]

Helping Children with Congenital Cytomegalovirus (CMV)

When a baby is born with cytomegalovirus (CMV) infection, it is called congenital CMV infection. About 1 out of every 200 babies are born with congenital CMV infection. Women can pass CMV to their baby during pregnancy.

According to the Centers for Disease Control and Prevention (CDC), only about 1 in 5 babies with congenital CMV infection will be sick from the virus or will have long-term health problems, but those problems can include hearing loss, vision loss, intellectual disability, muscular weakness, and even seizures.

Find out more about the two-article CDC resource (available in English and Spanish) and connect with its website devoted to CMV.

Lead Poisoning

Updated, October 2017 This short resource page provides a brief overview of lead poisoning and connections to sources of additional information. It accompanies a longer fact sheet on Other Health Impairment. The Individuals with Disabilities Education Act (IDEA), our nation’s special education law, defines 14 categories of disability under which a child may be found eligible for special […]

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