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Sexual Health Education for Young People with Disabilities

(2018, November) | Useful to Parent Centers, families, and youth with disabilities In recent years, changes in public policies and attitudes have resulted in improved opportunities for people with physical and intellectual disabilities. Unfortunately, societal attitudes have changed less in regard to sexuality and disability. Even today, many people do not acknowledge that most people […]

Slow Processing Speed: What You Need to Know

Processing speed is the pace at which you take in information, make sense of it, and begin to respond. This information can be visual, such as letters and numbers. It can also be auditory, such as spoken language. Having slow processing speed has nothing to do with how smart kids are—just how fast they can take in and use information. It may take kids who struggle with processing speed a lot longer than other kids to perform tasks, both school-related and in daily life.

Understood.org offers what is essentially a suite of resources on processing speed, which includes articles, short videos, 1-page fact sheets, and everything in English and Spanish. Read more about and access this wide array of resources.

A Resource Collection on Trauma-Informed Care

A resource collection compiled by and for Parent Centers Compiled and reviewed by: Gail Osborne, the First Resource Center (NC), and Kelly Henderson, Formed Families Forward (VA) Coordinators at the Region 2 PTAC @ ECAC: Laura Weber, Executive Director, and Terri Leyton, TA Coordinator ___________________________ September 2018 Welcome to this collection of resources on trauma-informed care. The […]

Disability Groups

Updated October 2018 Disability groups operate nationwide to share information and resources on specific disabilities. Quite often, these national-level organizations also have chapters in every state—and those state chapters may have multiple local chapters. All operate as a source of help for families and professionals in addressing the needs and well-being of individuals with the disability […]

Helping Children Cope and Children with Special Healthcare Needs in Emergencies | Spanish

(2018, June) | Spanish | Useful to Parent Centers and other service organizations working with Spanish-speaking families to prepare for or recover from a natural disaster or other emergency. These two resources comes from the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the Children’s Preparedness Unit and focus on helping parents, caregivers, and […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Heard of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis? This long-term illness causes extreme fatigue and sleep programs but is often called an “invisible” disease because usually the only thing noticeable is the person’s “pallor.” ME/CFS affects an estimated 836,000 to 2.5 million individuals in the United States (including children), although most have not been officially diagnosed. On “bad” days, those with the illness may feel so weak and exhausted that they can’t go to doctor appointments, for example, or go to or function at school.

Find out more about ME/CFS in this new fact sheet from the Centers for Disease Control and Prevention (CDC). Three versions are available: one for parents and guardians, another for healthcare professionals, and a third for education professionals.

Health Care and the Medical Home

A medical home is the kind of primary health care we all want and deserve. A medical home is not a place—it is the way care is provided to children/youth and their families. If you have a child with health care needs, or you work with families that do, visiting the National Center for Medical Home Implementation will lead you to a great many resources, including: 1-page fact sheets, pages and forms you can use to “build your care” notebook, and interactive maps where you can find out more about medical home initiatives going on in your state and points of contact.

Want to connect with all this and more? Let us tell you more about the National Center here.

What is Applied Behavior Analysis?

Applied behavior analysis (ABA) is the most common therapy for children on the autism spectrum. ABA has been shown to help children on the spectrum (from mild to severe) develop needed skills and minimize undesired behaviors such as self-injury. Its effectiveness is backed up by hundreds of studies.

ABA now includes a range of different approaches. This article from the Child Mind Institute describes how they work and how they’re different, and concludes with links to additional readings on ABA.

Access the article in English and Spanish, and connect with the companion readings.

CDC’s Report to Congress on the Management of TBI in Children

A traumatic brain injury (TBI) disrupts the normal function of the brain, and can be caused by a bump, blow, or jolt to the head, or a related injury. It affects children differently from adults–and children have the highest rate of emergency department visits for traumatic brain (TBI) injury of all age groups. The Centers for Disease Control and Prevention (the CDC) have just released a Report to Congress on the Management of Traumatic Brain Injury in Children, which details the impact a TBI can have on children and their families. Accompanying the report are 4 fact sheets for different audiences as well as graphics and digital ads that can be used on the web, Facebook, and Twitter to “get the message out.”

Access the CDC’s report to Congress, the fact sheets, and other materials, beginning at:
https://www.cdc.gov/traumaticbraininjury/pubs/congress-childrentbi.html

Disability Awareness

Updated, January 2018 Parent Centers receive many calls and emails each year from people looking for materials on disability awareness. People need these materials to help community members, employers, organizations, and residents learn more about disabilities and what it means for people to live with a disability or raise a child with a disability. Having information […]

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