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How Guardianship and Alternatives Impact the Autonomy of People with ID/DD

Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities is an authoritative report submitted by the National Council on Disability to the President and Congress as part of the Council’s independent advisory role. The report examines the challenges faced by individuals with intellectual and developmental disabilities (ID/DD), and how the use of alternatives such as supported decision-making enable some individuals with ID/DD to exercise greater self-determination and economic self-sufficiency. Access the report here.

Charting the LifeCourse

The National Community of Practice for Supporting Families of Individuals of I/DD has been working to develop systems of support for families throughout the lifespan of their family member with intellectual and developmental disabilities (I/DD). Especially for individuals, families, and professionals are the Charting the LifeCourse materials, which include a LifeCourse toolkit in English and Spanish. The framework for Charting the LifeCourse was created BY FAMILIES to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.

Read more about and access the LifeCourse Toolkit in English and Spanish here.

Apprenticeship Resources Collection

(2019, August) | Useful to Parent Centers, families, youth, and transition planners regarding work-based training, classroom instruction, and mentorship for youth with disabilities. The RAISE Center has created a resource collection focused on apprenticeship for youth with disabilities. Apprenticeships have been used for centuries to provide hands-on trade skills. Apprenticeship programs provide work-based training, classroom […]

Comprehensive Center Network Website and Information Portal

(2018, July) | Useful to: All education stakeholders searching for information about activities and publications of the Comprehensive Center network. Newly launched! The Department of Education has launched a new website for the Comprehensive Center Network (CC Network). The site compiles more than 700 resources developed by 23 regional and content-focused centers, and more than […]

Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination

According to the National Council on Disability (NOD), guardianship is overused and often unnecessarily deprives individuals with disabilities of their rights. Typically, guardianship involves a state-court determination that an individual lacks the capacity to make decisions with respect to their health, safety, welfare, and/or property. Yet, there are many alternatives to guardianship that increase the ability of individuals with disabilities to exercise self-determination, live and work in the community, and participate in civic life. The report explores these alternatives and includes recommendations that will help align the use of guardianship and decision-making alternatives with the Americans with Disabilities Act and national policies of equal access and opportunity.

Read more about Beyond Guardianship, and access it in multiple forms (PDF, Word, summary).

Digest of Education Statistics 2016

(2018, February) | Useful to Parent Centers and all stakeholders in public education. The Digest of Education Statistics is an annual publication of National Center for Education Statistics (NCES), compiling statistical information that covers the broad field of American education from prekindergarten through graduate school. The Digest provides data on a variety of topics, including the […]

Charting the LifeCourse Toolkit

This toolkit is designed to help caregivers understand the value of respite, learn from real life examples, and create a respite plan that enhances the lives of all family members. It’s meant for family caregivers of a child or adult with a disability, chronic condition, or functional limitation (or professionals who work with family caregivers). The toolkit, which is available in English and Spanish, is built upon the Charting the LifeCourse Framework, which was created BY FAMILIES to help individuals and families of all abilities and all ages: (a) develop a vision for a good life, (b) think about what they need to know and do, (c) identify how to find or develop supports, and (d) discover what it takes to live the lives they want to live.

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