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Sexual Health Education for Young People with Disabilities

(2018, November) | Useful to Parent Centers, families, and youth with disabilities In recent years, changes in public policies and attitudes have resulted in improved opportunities for people with physical and intellectual disabilities. Unfortunately, societal attitudes have changed less in regard to sexuality and disability. Even today, many people do not acknowledge that most people […]

Federal Resources for Health Information in Other Languages

(2018) | Looking for health information in other languages to share with the families you serve? Health literacy refers to a person’s ability to understand the basic health information they need to make appropriate health decisions. Health care and health-related information in the United States are most frequently delivered in English, which means that patients […]

Basic Information about Trauma

A resource collection compiled by and for Parent Centers. Coordinated by the Region 2 Parent Technical Assistance Center @ ECAC September 2018 The contents of this page will help Parent Centers, families, and others build their knowledge base and understanding of what trauma is, what kinds of trauma there are, and how it affects children in […]

Behavioral Health Conditions in Children and Youth Exposed to Natural Disasters

(2018, August) | Useful to Parent Centers, care professionals, and families in understanding and responding to the behaviors they may see in children and youth following a natural disaster. While children and youth may experience disaster reactions similar to those of adults, in other ways their experience of disasters is different. Because children and youth […]

Helping Children Cope and Children with Special Healthcare Needs in Emergencies | Spanish

(2018, June) | Spanish | Useful to Parent Centers and other service organizations working with Spanish-speaking families to prepare for or recover from a natural disaster or other emergency. These two resources comes from the National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the Children’s Preparedness Unit and focus on helping parents, caregivers, and […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Heard of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis? This long-term illness causes extreme fatigue and sleep programs but is often called an “invisible” disease because usually the only thing noticeable is the person’s “pallor.” ME/CFS affects an estimated 836,000 to 2.5 million individuals in the United States (including children), although most have not been officially diagnosed. On “bad” days, those with the illness may feel so weak and exhausted that they can’t go to doctor appointments, for example, or go to or function at school.

Find out more about ME/CFS in this new fact sheet from the Centers for Disease Control and Prevention (CDC). Three versions are available: one for parents and guardians, another for healthcare professionals, and a third for education professionals.

Health Care and the Medical Home

A medical home is the kind of primary health care we all want and deserve. A medical home is not a place—it is the way care is provided to children/youth and their families. If you have a child with health care needs, or you work with families that do, visiting the National Center for Medical Home Implementation will lead you to a great many resources, including: 1-page fact sheets, pages and forms you can use to “build your care” notebook, and interactive maps where you can find out more about medical home initiatives going on in your state and points of contact.

Want to connect with all this and more? Let us tell you more about the National Center here.

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