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Rare Disorders

Disability Fact Sheet Resources updated, March 2021 “Alone we are rare. Together we are strong.” Slogan of Rare Disease Day —February 29, 2012. Roughly 7,000 rare diseases/disorders have been identified as affecting the human race. Because they are rare, it can be a real challenge for a person to be accurately diagnosed. Finding effective treatments, especially […]

Mental Health Resources

Updated, February 2021 There are many, many organizations and groups that deal with mental health. This page will help you find the one or ones that offer the type of assistance, intervention, or information you’re seeking. We’ve organized the information into the following sections: If it’s a crisis… (Keep scrolling) A quick-read fact sheet Be […]

Six Core Elements of Health Care Transition

Health care transition, or HCT, is the process of moving from a child/family-centered model of health care to an adult/patient-centered model of health care, with or without transferring to a new clinician. It involves planning, transfer, and integration into adult-centered health care. There’s a federally funded national resource center on health care transition (HCT) called Got Transition®. The Center has just issued the 3rd edition of its Six Core Elements of Health Care Transition, which lays out the basic components of a structured transition process and includes an Implementation Guide and customizable sample tools in English and Spanish. Read more about this revised and updated toolkit and access its different components in either English or Spanish here.

Coping with COVID-19 for Adults and for Children

  New resources added during the week of July 20-24, 2020. These appear first in the list of resources below. Note: A date in parentheses means the publication date of that resource, not the date we posted it here. This is to let you see at a glance how current the information is.   Updated […]

Supporting the Whole Child through Trauma-Informed Practice

(2020, January) | Useful to Parent Centers and others working with children who’ve experienced trauma. Equipped with rapidly growing knowledge about how trauma can undermine young people’s healthy development and ability to learn, many youth-serving professionals, community leaders, and policymakers are infusing principles of trauma-informed practice into program design, implementation, and policy proposals. Creating Cultures of […]

Self-Care A-Z: Think Self-Care Always Feels Good?

(2019) | Useful to Parent Center staff, families, and others exploring the importance of self-care. This brief article in the New Social Worker Magazine takes a wry and unflinching look at self-care. While it readily acknowledges the importance of taking care of yourself physically, spiritually, and emotionally, the article actually focuses on another aspect that’s […]

Developmental Disabilities | Discapacidades del Desarrollo

When a baby or preschooler lags far behind, doesn’t reach key developmental milestones, or loses a previously acquired skill, it’s reasonable to suspect a mental or physical problem serious enough to be considered a developmental disability. These pages in English and Spanish appearing on the HealthyChildren.org website provide authoritative guidance on developmental disabilities, developmental milestones at various ages, and what parents and professionals need to know or do. Each page is actually a suite of articles in both languages about specific disabilities that are considered as developmental disabilities. Perfect for sharing with the English and Spanish-speaking families and communities you serve!

See the full list of articles and find links to both the English and Spanish suites.

CBD: What Parents Need to Know

(2019) | Useful to those interested in learning more about the relative effects of CBD (full name cannabidiol) as a treatment for pain, cancer, anxiety, and AD/HD. CBD is everywhere. From corner stores and bars to medical marijuana dispensaries, it’s being offered for its reputed ability to relieve pain and make people feel better. CBD — […]

Milestones Photo and Video Library

Children reach milestones in how they play, learn, speak, act, and move (rolling over, for example, or crawling, standing, walking, talking). The Centers for Disease Control and Prevention (CDC) maintain a free online library of photos and videos that capture the milestones of development that young children might be expected to achieve at various ages–skills such as taking a first step, smiling for the first time, and waving “bye bye.”

The photo library is part of CDC’s larger information suite Milestones in Action, which also includes fact sheets on developmental milestones and on developmental delay; a developmental checklist; the Milestone Tracker app; and more. Each resource is available in English and Spanish.

Interested? Read more about (and access) Milestones in Action here.

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